I know that it’s improper of me to place an entire copyrighted article in my personal blog. I’m hoping that the sharks at the Star Tribune won’t send me a nasty letter ordering me to remove it from this site. Unfortunately, the Star Tribune doesn’t keep their articles archived for public viewing - and this story needs to be remembered.
The truth is, this story is heart-breaking and heart-warming in the same breath.
If you have a tendency to cry at sad stories, then it’s mandatory to have tissue on hand….
Baby Riley David Charles had a lifetime packed with love
Trudi Hahn
Star Tribune
Published Jan. 16, 2003
The family of Riley David Charles lavished him with love.
Relatives and godparents delighted in holding him. They read to him. They took hundreds of pictures of him, almost from the moment he was born.
About 90 minutes after that moment, Riley David Charles released one last breath and died. It was about 7:30 a.m. on Jan. 2.
His parents, Kevin and Laura Charles of Minneapolis, had known since late September that something was terribly wrong. A sonogram and an MRI scan in about the 20th week of pregnancy revealed that Riley’s kidneys had stopped developing at about five weeks. His condition was called bilateral renal agenesis, and because of it his lungs were unlikely to develop.
In fact, the medical people told them, the baby could not live with his condition, also known as Potter’s Sequence. Babies with this condition who are born alive have an average life span of 30 minutes.
The doctors asked the couple: What do you want to do?
They wanted to make memories with their baby, they decided.
Baby already had a nickname: “Noodle,” gender-free and full of fun.
Now that the Charleses knew that their baby was a boy, they gave him a real name: Riley David Charles.
He had already heard the story of “The Velveteen Rabbit,” about a cloth bunny that an angel turns into a living bunny.
As they read to Riley in the womb, the book “just seemed to talk to us,” Kevin said.
The story teaches that love makes you real, Laura said. The depth of that lesson popped out at them when they read it to Riley again with heavy hearts after the diagnosis.
The couple checked into Abbott Northwestern Hospital in Minneapolis early on New Year’s Day when it was apparent the baby wasn’t going to wait for his Jan. 31 due date. Early on Jan. 2, Riley’s birth was imminent. Kevin barely had time to phone the grandparents before Riley appeared at 6:05 a.m.
Exactly as the couple had asked, Riley was put in Laura’s arms as soon as he was toweled off and fluid had been suctioned from his breathing passages.
But the doctor said he couldn’t feel a pulse in the umbilical cord, and he didn’t think Riley had made it alive.
“Oh, that was the hardest thing to hear,” Laura said.
The couple held their son and cried.
Then the baby hiccuped.
Laura looked at Kevin. Could he do that without being alive?
Then Riley scrunched up his face.
And then he gurgled as he took his first breaths of air.
A stethoscope confirmed a heartbeat. Riley was alive, and Laura and Kevin had their chance to be a family with their firstborn.
Kevin, 27, an information-technology specialist for the University of Minnesota, and Laura, 33, an art teacher in the Spring Lake Park School District, had come to the hospital with suitcases jammed with the stuff of hope. The first item they grabbed was a vial of holy water for a baptism.
A three-page birth plan they had written for their medical team had specified a particular hospital chaplain to perform the baptism, but she wasn’t at work yet. So the couple started a simple sentence from their Catholic faith: “Riley David, we baptize you, in the name of the Father, and. . . . ”
When their strained minds faltered, the doctor joined in: ” . . . and the Son and the Holy Spirit. Amen.”
Faith a factor
Laura’s faith in God had been a big part of her decision to carry the baby to term. She and her husband had struggled with preparing for a birth, memorial service and burial all at the same time. But any doubts about the wisdom of their decision disappeared one day in late October.
Laura had been washing dishes and suddenly felt peace and grace sweep over her, she said.
She sat down and wrote a long paragraph about her feelings.
“This tiny little one has made me see God’s plan for us. That life is not just what we have here on Earth with all the triumphs and tribulations, it goes far beyond that,” she wrote.
“I can’t explain why bad things happen to good people, except to say that maybe we’re meant to look at those atrocities in a different light.”
Shortly after Riley’s birth, people filled the room: both sets of grandparents, his godmother, an aunt. An uncle who was away on vacation called in.
Because Riley had no kidneys, he couldn’t make urine while in the womb. Because he couldn’t make urine, he couldn’t make amniotic fluid (which is mostly urine after the 14th week of development). Because there wasn’t enough amniotic fluid, he was tightly confined in the womb rather than floating in it, and there wasn’t room to move or to practice breathing movements.
His lungs would be too tiny to support life, the couple had been told, and Riley might not be perfectly formed. But the only outward sign of his condition was a missing right thumb.
“His face was peaches and cream,” Laura said, “but his hands were kind of blue.” He didn’t cry; he gurgled.
They wrapped him in a turquoise quilt with a bunny print that they’d been given by a member of the Potter’s Syndrome Support Group, which they had found online.
They knew it would be a comfort, later, to possess something that had touched their baby’s skin.
Loving Riley
Everyone in the room took turns holding Riley.
The room was so quiet that all they could hear was his breathing.
They took turns reading from “The Velveteen Rabbit,” passing the book from hand to hand.
The chaplain arrived and led a naming ceremony as relatives held hands in a circle. Then Kevin settled into a rocking chair with Riley. A few minutes later, when a nurse checked for a heartbeat, she couldn’t find one. Riley was gone.
Kevin brought the baby to Laura, and they held him and cried.
An uncle and the other godparent soon arrived, and relatives held Riley for photographs before they withdrew to allow Laura and Kevin to be alone with their baby.
The couple snipped off a lock of Riley’s hair. They used an ink pad to make handprints and footprints on paper. They made plaster molds and clay molds of his hands and feet.
The nurse weighed and measured him: 3 pounds, 10.8 ounces; 15.5 inches long.
Then his parents bathed and dressed him. It had taken months to find an outfit for the tiny baby they expected.
They looked at him for a long time; they stroked his hair and kissed him some more. They put him in a bassinet so they could try to eat breakfast. They hadn’t slept for two days and two nights.
Finally, they had to let him go. A nurse carried their baby away.
Five days after Riley lived, sunset painted the sky with a rainbow of hues from purple to blue to pink. Laura was sure it was Riley making things beautiful in heaven.
“Kevin saw it and said, ‘Uh-oh, they gave Riley the watercolors.’ ”
. . .

“When I miss him so much I can hardly stand it, I remember the feel of his head on my lips,” Laura Charles wrote days after Riley’s birth. “He was a perfect blend of Kevin and me.”


Kevin & Laura Charles held the tiny hands of their newborn son Riley David Charles.

Kevin & Laura Charles spend precious time with their son Riley David Charles.
. . . .
Riley’s grandfather, Star Tribune photographer Mike Zerby, took these photos.
– Trudi Hahn is at thahn@startribune.com.
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